Government Study Is a Data Privacy Reminder

A new US government study on autism aims to collect vast amounts of medical records -- a fresh reminder that data, once collected and shared, can be used in ways you never expected. The best way to protect sensitive information is not to collect it in the first place.


We’re glad we don’t handle any therapy session audio or transcripts. This headline is another reminder: be intentional with the data you collect, who you share it with, and whether it’s truly necessary in the first place.

Headline: RFK Jr:'s autism study to amass medical records of many Americans

A privacy guarantee today isn’t a guarantee tomorrow -- government overreach, acquisitions, bankruptcies… even the courts can’t always ensure due process. The best way to protect sensitive information? Don’t handle it at all.

Meanwhile, VC-backed mental health companies are training on this data, refining their products, boosting valuations, and maximizing stakeholder returns. It’s clear why it benefits them.

But is it what’s best for the therapist? For the client?

Especially in these times?

Quill is proof that you can use an AI therapy notes tool and not record or transcribe your therapy sessions. And we can sleep soundly at night knowing that the contents of these sessions won't suddenly get pulled into a government study like this one.


Here's a link to the CBS News article referenced above: https://www.cbsnews.com/news/rfk-jr-autism-study-medical-records/

Published on April 22, 2025.

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